Briefs and Reports
Recommendations for Research, Advocacy and Supports Relating to Siblings of People with Developmental Disabilities. (2008). Heller, T., Kaiser, A., Meyer, D., Fish, T., Kramer, J., & Dufresne, D.
This white paper was developed by The Sibling Leadership Network (SLN), a national organization that provides adult siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families. The SLN was founded by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities, the Nisonger Center at The Ohio State University, the Sibling Support Project, and the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities.
ITEM NO: 600.035
COST PER UNIT: $10.00
Can be downloaded at no charge (Word Doc)
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A community coming together to support children and adults with developmental disabilities and their families: Project for Family Support 360 final report. (2007). Heller,T., Connolly, K. & Lacey, B. Chicago: Institute on Disability and Human Development, University of Illinois at Chicago.
This report describes the development and outcomes of a one-stop center that meets the information and support needs of unserved and under-served Chicago area Latino families of children and adults with developmental disabilities. The center is a unique family driven model that demonstrates how advocacy training enabled these families to obtain long-term funding to sustain the center's operations. This report is available in English and Spanish.
ITEM NO: 600.E28 (English) ; 600.S28 (Spanish)
COST PER UNIT: $10.00
Can be downloaded at no charge from IDHD website
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Aging with a Developmental Disability: 2005 White House Conference on Aging Listening Session Testimony, (2005). Factor, A.
This brief identifies the issues that aging adults with I/DD and their families face, indicating why their service and support needs should be included in the 2005 White House Conference on Aging Agenda.
ITEM NO: 610.012
COST PER UNIT: $5.00
Can be downloaded at no charge
----------------------------------------------------------------
Information about the Preparing Community Agencies for Adults Affected by Dementia Project (PCAD Project) (2005). Janicki, M., Dalton, A., McCallion, P., Baxley, D., & Zendell, A.
A preliminary report about the NIDRR funded research project on how community agencies adapt their services for adults with intellectual disabilities.
ITEM NO: 610.010
COST PER UNIT: $3.75
Can be downloaded at no charge
----------------------------------------------------------------
RRTCADD Disability Research Briefs
This new series of briefs summarize RRTCADD research projects and their findings.
Disability Research Brief: Evaluation of a consumer directed program: Illinois (2004). Heller, T. & Caldwell, J.
This research brief presents the outcomes of Illinois innovative consumer-directed Home Based Support Services Program for adults with developmental disabilities and their families. It compares participants and non-participants on service use and satisfaction, community involvement, and the need for out-of-home residential placements.
ITEM NO: 600.024
COST PER UNIT: $3.00
Can be downloaded at no charge
----------------------------------------------------------------
Predictors of use of nursing homes and state institutions for persons with DD (2004). Rizzolo, M.K.
This RRTCADD research brief explains the wide variation in states' use of nursing homes and state institutions compared to community residential options for individuals with developmental disabilities. It also compares the health characteristics of nursing home residents with and without developmental disabilities.
ITEM NO: 600.025
COST PER UNIT: $3.00
Can be downloaded at no charge
----------------------------------------------------------------
Supporting aging caregivers and adults with developmental disabilities in future planning (2004). Heller, T., Caldwell, J. and Factor, A.
This brief evaluates the outcomes of an innovative training curriculum that equips adults with disabilities and their families with the communication skills and information to jointly plan for the future with the support of peer mentors who have already made plans.
ITEM NO: 600.026
COST PER UNIT: $3.00
Can be downloaded at no charge
----------------------------------------------------------------
DD data brief: Gender, age, and disability differences in functional limitations for non-institutionalized adults in the NHIS-D, (Vol. 6, No.1) January, 2004. Doljanac, R., Larson, S., & Lakin, C. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.
This DD Data Brief summarizes findings from the 1994-95 National Health Interview Survey on Disability. This DD Data Brief describes gender, age, and disability differences in functional limitations for non-institutionalized adults.
Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.
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DD data brief: Service use by and needs of adults with functional limitations or ID/DD in the NHIS-D: Difference by age, gender, and disability, (Vol. 5, No.2), (Dec. 2003). Larson, S., Lakin, C., & Huang, J. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.
This DD Data Brief summarizes findings from the 1994-95 National Health Interview Survey on Disability. It supplements the April 2001 MR/DD Data Brief on characteristics of and service use by persons with MR/DD living in their own homes or with family members. This brief examines how service use and needs vary by age, gender, and (persons with intellectual and/or developmental disabilities [ID/DD] versus persons with one or more substantial functional limitations who do not meet the criteria of having ID/DD].
Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.
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DD data brief: Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D, (Vol. 5, No.1), (May 2003). Anderson, L., Larson, S., Lakin, C., & Kwak, N. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.
This DD Data Brief describes the experiences with public and private health insurance coverage for people with functional limitations, people with I/DD, and people who do not have I/DD or functional limitations. This Brief also examines the variations in these outcomes by gender and age.
Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.
----------------------------------------------------------------
Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities: Report of the 2001 Invitational Research Symposium on Aging with Developmental Disabilities, (2002). Heller, T., Janicki, M, P., Hammel, J., & Factor, A.R.
This report summarizes the research to date and presents recommendations for future research, progressive policies, and innovative intervention to promote healthy aging, support aging adults and their families, and create age-friendly communities. These recommendations coalesce the thinking of the 100 plus international researchers, service providers, families and persons with disabilities who participated in the conference.
ITEM NO: 600.017
COST PER UNIT: $10.00
Can be downloaded at no charge
----------------------------------------------------------------
Coordinating systems serving carers of children and adults with developmental disabilities, (2002). Janicki, M.
Aging adults with intellectual and developmental disabilities face many of the same challenges as other aging adults. Physical aging, social isolation, disengagement from work or activities and challenges of retirement are issues that must be faced by aging adults with cognitive disabilities in addition to the possibility of needing additional assistance from carers to determine their future. This report gives an overview of common definitions, care and support issues, and how systems can partner in the delivery of community support networks. Reproduced with permission of the U.S. Administration on Aging and The Lewin Group.
ITEM NO: 600.006
COST PER UNIT: $7.00
Can be downloaded at no charge
----------------------------------------------------------------
This white paper was developed by The Sibling Leadership Network (SLN), a national organization that provides adult siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families. The SLN was founded by the Rehabilitation Research and Training Center on Aging with Developmental Disabilities, the Nisonger Center at The Ohio State University, the Sibling Support Project, and the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities.
ITEM NO: 600.035
COST PER UNIT: $10.00
Can be downloaded at no charge (Word Doc)
----------------------------------------------------------------
A community coming together to support children and adults with developmental disabilities and their families: Project for Family Support 360 final report. (2007). Heller,T., Connolly, K. & Lacey, B. Chicago: Institute on Disability and Human Development, University of Illinois at Chicago.
This report describes the development and outcomes of a one-stop center that meets the information and support needs of unserved and under-served Chicago area Latino families of children and adults with developmental disabilities. The center is a unique family driven model that demonstrates how advocacy training enabled these families to obtain long-term funding to sustain the center's operations. This report is available in English and Spanish.
ITEM NO: 600.E28 (English) ; 600.S28 (Spanish)
COST PER UNIT: $10.00
Can be downloaded at no charge from IDHD website
----------------------------------------------------------------
Aging with a Developmental Disability: 2005 White House Conference on Aging Listening Session Testimony, (2005). Factor, A.
This brief identifies the issues that aging adults with I/DD and their families face, indicating why their service and support needs should be included in the 2005 White House Conference on Aging Agenda.
ITEM NO: 610.012
COST PER UNIT: $5.00
Can be downloaded at no charge
----------------------------------------------------------------
Information about the Preparing Community Agencies for Adults Affected by Dementia Project (PCAD Project) (2005). Janicki, M., Dalton, A., McCallion, P., Baxley, D., & Zendell, A.
A preliminary report about the NIDRR funded research project on how community agencies adapt their services for adults with intellectual disabilities.
ITEM NO: 610.010
COST PER UNIT: $3.75
Can be downloaded at no charge
----------------------------------------------------------------
RRTCADD Disability Research Briefs
This new series of briefs summarize RRTCADD research projects and their findings.
Disability Research Brief: Evaluation of a consumer directed program: Illinois (2004). Heller, T. & Caldwell, J.
This research brief presents the outcomes of Illinois innovative consumer-directed Home Based Support Services Program for adults with developmental disabilities and their families. It compares participants and non-participants on service use and satisfaction, community involvement, and the need for out-of-home residential placements.
ITEM NO: 600.024
COST PER UNIT: $3.00
Can be downloaded at no charge
----------------------------------------------------------------
Predictors of use of nursing homes and state institutions for persons with DD (2004). Rizzolo, M.K.
This RRTCADD research brief explains the wide variation in states' use of nursing homes and state institutions compared to community residential options for individuals with developmental disabilities. It also compares the health characteristics of nursing home residents with and without developmental disabilities.
ITEM NO: 600.025
COST PER UNIT: $3.00
Can be downloaded at no charge
----------------------------------------------------------------
Supporting aging caregivers and adults with developmental disabilities in future planning (2004). Heller, T., Caldwell, J. and Factor, A.
This brief evaluates the outcomes of an innovative training curriculum that equips adults with disabilities and their families with the communication skills and information to jointly plan for the future with the support of peer mentors who have already made plans.
ITEM NO: 600.026
COST PER UNIT: $3.00
Can be downloaded at no charge
----------------------------------------------------------------
DD data brief: Gender, age, and disability differences in functional limitations for non-institutionalized adults in the NHIS-D, (Vol. 6, No.1) January, 2004. Doljanac, R., Larson, S., & Lakin, C. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.
This DD Data Brief summarizes findings from the 1994-95 National Health Interview Survey on Disability. This DD Data Brief describes gender, age, and disability differences in functional limitations for non-institutionalized adults.
Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.
----------------------------------------------------------------
DD data brief: Service use by and needs of adults with functional limitations or ID/DD in the NHIS-D: Difference by age, gender, and disability, (Vol. 5, No.2), (Dec. 2003). Larson, S., Lakin, C., & Huang, J. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.
This DD Data Brief summarizes findings from the 1994-95 National Health Interview Survey on Disability. It supplements the April 2001 MR/DD Data Brief on characteristics of and service use by persons with MR/DD living in their own homes or with family members. This brief examines how service use and needs vary by age, gender, and (persons with intellectual and/or developmental disabilities [ID/DD] versus persons with one or more substantial functional limitations who do not meet the criteria of having ID/DD].
Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.
----------------------------------------------------------------
DD data brief: Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D, (Vol. 5, No.1), (May 2003). Anderson, L., Larson, S., Lakin, C., & Kwak, N. (Eds.), Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.
This DD Data Brief describes the experiences with public and private health insurance coverage for people with functional limitations, people with I/DD, and people who do not have I/DD or functional limitations. This Brief also examines the variations in these outcomes by gender and age.
Order directly from University of Minnesota at 612-624-4512, http://rtc.umn.edu/nhis or by email: publications@icimail.umn.edu.
----------------------------------------------------------------
Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities: Report of the 2001 Invitational Research Symposium on Aging with Developmental Disabilities, (2002). Heller, T., Janicki, M, P., Hammel, J., & Factor, A.R.
This report summarizes the research to date and presents recommendations for future research, progressive policies, and innovative intervention to promote healthy aging, support aging adults and their families, and create age-friendly communities. These recommendations coalesce the thinking of the 100 plus international researchers, service providers, families and persons with disabilities who participated in the conference.
ITEM NO: 600.017
COST PER UNIT: $10.00
Can be downloaded at no charge
----------------------------------------------------------------
Coordinating systems serving carers of children and adults with developmental disabilities, (2002). Janicki, M.
Aging adults with intellectual and developmental disabilities face many of the same challenges as other aging adults. Physical aging, social isolation, disengagement from work or activities and challenges of retirement are issues that must be faced by aging adults with cognitive disabilities in addition to the possibility of needing additional assistance from carers to determine their future. This report gives an overview of common definitions, care and support issues, and how systems can partner in the delivery of community support networks. Reproduced with permission of the U.S. Administration on Aging and The Lewin Group.
ITEM NO: 600.006
COST PER UNIT: $7.00
Can be downloaded at no charge
----------------------------------------------------------------
