Improving Health Experiences and Access to Health Services for Women with Intellectual and Developmental Disabilities (I/DD) (R3)
Principal Investigator(s): Tamar Heller, PhD & Allison A. Brown, PhD candidate,
Co-Investigator(s): Kristi L. Kirschner, MD & Carol J. Gill, PhD
Goals:
* Explore health experiences and access for women with I/DD, as conveyed through the words and experiences of women with I/DD, their caregivers, and health professionals
* Develop models of community health for women with I/DD
* Explore innovative ways to connect women with I/DD to the network of community resources for other women with disabilities
* Develop guidelines for appropriate, accessible health services, and programs for women with I/DD
INFORMATION ABOUT CURRENT PROJECT (2003-2008)
Currently under construction. Please visit again soon.
TRAINING ACTIVITIES (2003-2008)
Women’s Health Access and Empowerment
TOPICS ON WOMEN'S HEALTH
Women's Health Resource Page
RELATED RESEARCH FINDINGS (1998-2003)
Examining the Health Status and Needs of Older Women with ID through NHIS Data - Final Report
Health Status and Needs of Women with ID - Final Report
Hormonal Risk Factors for Dementia in Women with Down Syndrome - Final Report
RELATED PUBLICATIONS AND PRODUCTS
* Brown, A. A. & Murphy, L. (1999). Aging with developmental disabilities: Women's health issues. Arlington, TX: The Arc of the United States and the RRTC on Aging with Mental Retardation. Fact Sheet available online at: http://www.uic.edu/orgs/rrtcamr/500015_womenshealth.pdf.
* Brown, A. A. & Gill, C. J. (2002). Women with developmental disabilities: Health and aging. Current Women's Health Reports, 2, 219-225. Article Available Online at: http://www.biomedcentral.com/content/pdf/cr-wr2334.pdf.
* Gill, C. J. & Brown, A. A. (2002). Health and aging issues for women with intellectual disabilities in their own voices. In P.N. Walsh & T. Heller (Eds.). Health of Women with Intellectual Disabilities (pp. 139-153). Oxford: Blackwell Science Publishing.
* Gill, C. J. & Brown, A. A. (2000). Overview of health issues of older women with intellectual disabilities. Physical & Occupational Therapy in Geriatrics, 18 (1), 23-36.
* Gill, C.J., Kirschner, K.L., & Panko-Reis, J. (1994). Health services for women with disabilities: Barriers and portals. In A. J. Dan (Ed.) Reframing Women’s Health (pp. 357-366). Thousand Oaks, CA: Sage Publications.
* Heller, T. & Marks, B. (2002). Health promotion and women. In P.N. Walsh & T. Heller, T.(Eds.). Health of Women with Intellectual Disabilities (pp. 170-189). Oxford: Blackwell Science Publishing.
* Seltzer, G. B., Schupf, N., & Wu, H. S. (2001). A prospective study of menopause in women with Down syndrome.Journal of Developmental Disability Research, 45 (1), 1-7.
* Walsh, P. N., Heller, T., Schupf, N., van Schrojenstein Lantman-de Valk, H., & Working Group (2000). Healthy Ageing – Adults with Intellectual Disabilities: Women’s Health Issues. World Health Organization, Geneva, Switzerland. Article available online at: URL: http://www.uic.edu/orgs/rrtcamr/womenshealthreport.html.
* Walsh, P. N., Heller, T. (Eds.) (2002). Health of Women with Intellectual Disabilities. Order online: http://www.uic.edu/orgs/rrtcamr/recentpub.htm
* Explore health experiences and access for women with I/DD, as conveyed through the words and experiences of women with I/DD, their caregivers, and health professionals
* Develop models of community health for women with I/DD
* Explore innovative ways to connect women with I/DD to the network of community resources for other women with disabilities
* Develop guidelines for appropriate, accessible health services, and programs for women with I/DD
INFORMATION ABOUT CURRENT PROJECT (2003-2008)
Currently under construction. Please visit again soon.
TRAINING ACTIVITIES (2003-2008)
Women’s Health Access and Empowerment
TOPICS ON WOMEN'S HEALTH
Women's Health Resource Page
RELATED RESEARCH FINDINGS (1998-2003)
Examining the Health Status and Needs of Older Women with ID through NHIS Data - Final Report
Health Status and Needs of Women with ID - Final Report
Hormonal Risk Factors for Dementia in Women with Down Syndrome - Final Report
RELATED PUBLICATIONS AND PRODUCTS
* Brown, A. A. & Murphy, L. (1999). Aging with developmental disabilities: Women's health issues. Arlington, TX: The Arc of the United States and the RRTC on Aging with Mental Retardation. Fact Sheet available online at: http://www.uic.edu/orgs/rrtcamr/500015_womenshealth.pdf.
* Brown, A. A. & Gill, C. J. (2002). Women with developmental disabilities: Health and aging. Current Women's Health Reports, 2, 219-225. Article Available Online at: http://www.biomedcentral.com/content/pdf/cr-wr2334.pdf.
* Gill, C. J. & Brown, A. A. (2002). Health and aging issues for women with intellectual disabilities in their own voices. In P.N. Walsh & T. Heller (Eds.). Health of Women with Intellectual Disabilities (pp. 139-153). Oxford: Blackwell Science Publishing.
* Gill, C. J. & Brown, A. A. (2000). Overview of health issues of older women with intellectual disabilities. Physical & Occupational Therapy in Geriatrics, 18 (1), 23-36.
* Gill, C.J., Kirschner, K.L., & Panko-Reis, J. (1994). Health services for women with disabilities: Barriers and portals. In A. J. Dan (Ed.) Reframing Women’s Health (pp. 357-366). Thousand Oaks, CA: Sage Publications.
* Heller, T. & Marks, B. (2002). Health promotion and women. In P.N. Walsh & T. Heller, T.(Eds.). Health of Women with Intellectual Disabilities (pp. 170-189). Oxford: Blackwell Science Publishing.
* Seltzer, G. B., Schupf, N., & Wu, H. S. (2001). A prospective study of menopause in women with Down syndrome.Journal of Developmental Disability Research, 45 (1), 1-7.
* Walsh, P. N., Heller, T., Schupf, N., van Schrojenstein Lantman-de Valk, H., & Working Group (2000). Healthy Ageing – Adults with Intellectual Disabilities: Women’s Health Issues. World Health Organization, Geneva, Switzerland. Article available online at: URL: http://www.uic.edu/orgs/rrtcamr/womenshealthreport.html.
* Walsh, P. N., Heller, T. (Eds.) (2002). Health of Women with Intellectual Disabilities. Order online: http://www.uic.edu/orgs/rrtcamr/recentpub.htm
